“This is me”

This week’s blog post comes in the form of a video. Featured in the video is Henry Rankin, Chair of The Scottish Dementia Working Group reading his personal story in which he has entitled This is me”. Sit back and enjoy this short video in which Henry challenges us all to think about how we look at someone living with dementia or what we remember about them.

We would like to add a special thanks to the fantastic Henry Rankin for his honesty and reflections.

You can find information on The Scottish Dementia Working Group and some of their members at their website http://www.sdwg.org.uk/ or follow them on twitter @S_D_W_G

Pic 1

We hope you have enjoyed watching and challenge you all to think…

  • What makes you who you are?
  • If you met someone, what would they remember about you?

We would also greatly appreciate any comments and feedback on this short video.

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17 thoughts on ““This is me”

  1. What A inspirational video my wife has dementia and is now in a carehome with out Alzheimer’s Scotland it would have been very hard for us but our Doctor recommended me to contact Alzheimer’s Scotland and to contact social services who where a great help so all Doctors should put you in touch with these services

    • Firstly, Thank you for taking the time to comment on the blog. It is great to hear that Alzheimer Scotland services have helped along with local social services. If you have any questions or worries you can still contact Alzheimer Scotland 24 hours a day 7 days a week using our Freephone Dementia helpline on 0808 808 3000 or by emailing helpline@alzscot.org

  2. Firstly thank you for your ‘This is Me’. It is fantastic. Secondly I hope your film is seen by many people who are diagnosed with a dementia and also, I hope professional people too see it. The film is inspiring. Unfortunately not everyone has your attitude to their reality when diagnosed, not knowing where to go, who to confide in and what can be done such as writing their ‘This is Me’ which truly is a useful document for their future. I wrote my uncle’s ‘This is Me’ though it would have been better if it had been documented when he could have contributed himself. But it is better than none.

    • Thank you very much for your comment. I really think this video is great and like you said, we hope that people who have dementia as well as health professionals and other people will get to see this video and hear Henry’s message.
      It is also great to hear that you were able to complete a ‘This is me’ for your uncle and we hope this video and blog post will also help people to think what is important to them and complete their own ‘This is me’ as it is great to hear or read what the person with dementia has said or written were possible.
      As I have said in the reply above, if you or anyone else in Scotland has a question or worry relating to dementia you can contact Alzheimer Scotland 24 hours a day 7 days a week using our Freephone Dementia helpline on 0808 808 3000 or by emailing helpline@alzscot.org

  3. Thank you for sharing your story , we met last year at Queen Margaret University, We hope that in future nobody will have to find out about there diagnosis this way , shameful .

    • Thank you for commenting and watching Henry’s video. I had the great privilege of working with Henry to complete this project and I’m sure you will agree he is really inspiring.
      The Scottish Dementia Working Group (SDWG) of which Henry is currently the Chairperson are continuing to campaign for greater services and care as well as greater rights for people with dementia and they are doing really fantastic work as a group. Information about SDWG can be found on their website at http://www.sdwg.org.uk/

  4. I would like to say thank you to Henry,as I am also a member of the Scottish dementia working group,for your inspiration and letting people know that there is life’s after a diagnosis of dementia,Archie Latta

    • Thank you for your comment Archie. From my experience of working with SDWG, you are all an inspiration and all demonstrate that there is most definitely a life after a diagnosis of dementia. Keep up the great work you are all doing!

  5. Such a positive video and I feel there isn’t enough positive things said about dementia. My mother is a suffer at the age of 57 and although it is a horrible illness I get so much joy and happiness from spending time with her! She still has her scense of humour. Good luck to Henry and his championship! Such an inspirational man.

    • Pauline, thank you for taking the time to view Henry’s video & also sharing with us that there can also be joy, happiness & humour when a person is living with dementia.
      We will ensure to send your comments onto Henry and the group.
      Many thanks again, Elaine

  6. I loved Henry’s story. My daughter was born with a type of restricted growth or dwarfism called Achondroplasia. Many of the comments rang true with us too. Firstly most people get told what condition their child has immediately. We had to wait for 7 months, were told we would get told in person when we got an unexpected letter through the post. It took another seven months to see the geneticist again for him to tell us about the condition, which, like Henry we had found out about through Google. It is also a life altering condition, Anna’s full adult height is likely to be around 4 foot. However it doesn’t define who she is, or maybe it does but only in an amazingly positive way. I suppose my point is that when these things happen you think ‘why me’ but then you realise someone going through something quite different has faced similar challenges. Good luck with the bowling Henry!

    • Mags, thank you for commenting on Henry’s film & great that you could connect with his story of “This is me” for you and your daughter.
      We will be sure to post a photo of Henry when he wins that bowling trophy!!
      Thanks again , Elaine

  7. Well done Henry, my friend in the SDWG understand all you say . Our voices will help,others coming to terms with a diagnose and we will share our knowledge of living well with this condition.

    • Anne, thank you for taking the time to comment on the blog post by Henry, you all do great work at the @S_D_W_G to share your own personal stories on living well with dementia.
      Many thanks, Elaine

  8. A massive thank you to Henry for sharing his story. As a health care professional I take this video as a humbling reminder that we must consider people living with dementia beyond the label of their diagnosis. I am a firm believer that everyone has a gift to share with the world regardless of age, ability etc and Henry has shown us that those living with dementia are no different.

    Thank you Henry

  9. Claire, thank you for commenting on this blog post by Henry, we will share your comment with him & the positive impact it has had on you
    Thank you for taking the time to comment, Elaine

  10. Pingback: From global to local: research, practice, innovation | Let's Talk about Dementia

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