A Post Diagnostic Resource by the Scottish Dementia Working Group “please don’t label me, I am more than my dementia”


The Scottish Dementia Working Group (SDWG) have developed a peer to peer resource for people who have been recently diagnosed with dementia. Members of the SDWG hope the  document highlights that people are still very capable and should not lose hope in themselves when receiving this diagnosis. Four themes were established from a conversation which began with the question: What is one thing you wish you had been told from somebody with dementia after being diagnosed?

  1. How to find acceptance and positivity
  2. Stay engaged in things that matter to you
  3. Having support from others can be vital to living well with dementia
  4. Get informed!

In this week’s blog, we are sharing our ideas on “How to find acceptance and positivity”

Everyone’s path to acceptance is different

Give yourself time to process your diagnosis. Some people may take longer than others, and that is okay. Often having a good support network or knowing that someone is there to check in on you can help you through the process.

Don’t stop believing in your strengths and abilities now that you have a diagnosis

Some people and their families think that being diagnosed means you “can’t do anything anymore”. However, you may find that you feel more confident, therefore become more involved, when you receive a formal diagnosis due to better support and understanding of how the illness will affect them.

Don’t give up hope for the future

Although things may not be the same, this may be an opportunity to try new hobbies or groups. Trying new things can add value and purpose to life after a diagnosis. People sometimes feel they live a better life now compared to when they were first diagnosed.

It would be great to hear your answers to the question

What is one thing you wish you had been told from somebody with dementia after being diagnosed?


For more information about this resource, please contact us at ScottishDementiaWorkingGroup@alzscot.org or connect with us at @S_D_W_G


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